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Saydie's SpaceSaydie's journey through Congenital Diaphragmatic Hernia. August 31 Long long overdueYes, I know...I am slacking...
Alot has happened in our small little world since my last update. This won't b real long winded as I don't have alot of time but wanted 2 update.
We have moved...to a much nicer house, nicer town, neighborhood and MUCH MUCH better schools!! :) It is stretching my budget but we are all alot happier here.
S remains in good health as of now...we have some upcoming appts. w/ the pulmonologist as well as an eye drs. appt. to have her eyes checked as well.
PLEASE PLEASE keep the kids and I in your thoughts and prayers as we have some horrible drama in our live right now that NO mother or person should EVER have to be put thru. I likely won't comment anymore here until it is over w/ or I know more of what 2 expect I am just asking for prayers @ this time.
Please also check out the pics I have posted...kind of all different ones but wanted to share. My babes r getting sooo big.
Hope to update again real soon!!
hugz-Jolene June 26 PicturesWell, I tried to add pics for the slide show but this lovely site doesn't like me...my patience are shot so I am DONE!! I will try to add one right here in this entry and see if it works if NOT I give!!
hugz~Jolene
Long time...Yes, I know I am slacking but to say life is busy and a mess is to say the least!! It seems the minute I take one step forward I am pushed ten steps back and wow does it get overwhelming.
Since my last blog Sayd is doing some what better. She completed 1st grade and did VERY VERY well even w/ missing as much as she did w/ illnes and surgery. She is already reading @ the middle of her 2nd grade reading level. She loves to read. :-) She went to vacation bible school and enjoyed that greatly. She is also going to a summer program thru the school system which includes some school activites as well as fun things like trips to the zoo, baseball games, h2o parks etc. I am very blessed she enjoys school as much as she does. We are enjoyin as much time outside as possible although the next couple of days will be difficult as she struggles greatly w/ humidity and ours will be very high w/ alot of heat.
I am tryin to keep things afloat here w/ Sayd's health. Still questioning her sleeping soo much even after a repeat sleep study which showed great improvement from the previous one. We are possibly going to see a nuerologist. She continues to NOT gain weight so a feeding tube is in our possible future. We will find out the end of August. Her lil sis goes today for follow-up to the allergist were nothing was previously found but she had some allergy symptoms over the week-end so glad to have the appt. She also is going to have her tonsils out as soon as I get a date for that. That is another long ugly story for another time.
Please keep the kids and I in your thoughts and prayers as we continue to struggle on w/ ongoing/never ending court issues. We really need to be left alone so I can get my head above water and keep it thier. The continued waste of $$ to prove myself as a parent is getting crazy!!
My next update will b sooner!! Thanks for checking on us!!
hugz-Jolene April 29 Walk for a Wish '07Just wanted to let anyone know that still reads our blog that Saydie & I will be participating in Make-A-Wishes' 2nd Annual Walk for Wishes this year. Saydie was given the wonderful wish of a trip to FL when she 4yrs. old. As a single mom of three little monkeys I am NO position to be able to give monatary donations to MAW although I would like to. So the walk this year is our way of giving back. I am currently working VERY VERY hard to come up w/ just the right name for our *team*...me and Saydie and possibly her big bro to. We want to include CDH in our name or something regarding it.
When I have a team name I will then have a website that anyone interested in donating may donate to our *team* to bring us closer to our goal. So please keep us in mind if you are in any position to be able to donate to *Walk for Wishes* this year.
Another update will come soon...I am off to finish cleaning and to a job interview.
hugz-Jolene April 16 Remember...Angel Drew today...he passed away after fighting a very courageous battle w/ CDH one year ago today.
Please also keep his mama Jana in your thoughts as she is due today w/ his little brother Carson. Praying for a healthy little Carson.
hugz-Jolene who will update more on Saydie's health soon |
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